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Product details
File Size: 450 KB
Print Length: 128 pages
Page Numbers Source ISBN: 1537570188
Publication Date: January 30, 2017
Sold by: Amazon Digital Services LLC
Language: English
ASIN: B01N28AMIG
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Amazon Best Sellers Rank:
#568,498 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
Lupus also known as SLE is an auto-immune disease that people are not too aware off compared to similar diseases such as arthritis. Lupus flare up can be painful for those who have SLE. This book covers all the needed topics for both the patient, family & friends enabling them to cope well with this disease. It explains how a Lupus patient can still keep living a "normal" life - how they incorporate and acknowledge the difficulties that they may come in life due to this disease. It helps you keep motivated while providing the impacts of Lupus and how to survive it. How to be Lupus warrior. It provides the inspiration to walk the walk for lupus patients.
I just read your book and I cried, laughed and wished I had it many years ago. I felt you were talking just to me while I read it.I was diagnosed 35 years ago when the outlook was grim but never thought of it because I was too busy raising my son. I had to depend on the information I received from the Lupus Foundation and searching periodicals to learn. Thankfully since them we've learned a lot about lupus.It will be life changing for anyone who reads it. I will keep your book and re-read it then when someone asks me to talk to someone they know I will pass it on and of course buy another! Thank you for writing your book and sharing your wisdom!Linda McDougall Meerdo
I learned so much reading "When Lupus Throws You For A Loop." I found myself wanting to take notes as I read the book. Although it is a very serious subject, I also found great humor in the book. One passage in particular was quite humorous and made me smile. The author, Donna Oram, explained how difficult it can be to make plans in advance for fear that you may become symptomatic and have to cancel them unexpectedly. Her husband had a business party that was mandatory and they were both required to attend. She reluctantly agreed to go and she went out and purchased a new outfit for the event, although she was so nervous and anxious about the possibility of being too sick to attend. As it turned out, they were unable to attend: her husband had the flu and was too ill to go to the party. I laughed and appreciated the irony. As a reader, there are so many gems in the book that can be applied to so many different situations that people encounter in their lives. The book is an amazing tool for someone with Lupus, but I also think other people with unpredictable diseases will also benefit from reading the book.The book has done a masterful job of guiding the person with Lupus through the entire journey and prepares them for the unexpected nature of the disease and other people's reactions to it. The author has great insight and helps the reader understand how the disease can "Throw You For A Loop." It is a five star book, and I highly recommend it.
I was diagnosed with lupus after a dermatology appointment earlier this summer. It was quite the surprise. I read this book a a road trip this past week and it has answered so many of my questions and gave me ideas in things to discuss with my rheumatologist.
I read this book in a couple of days and was disappointed in that it only covered the issues of feelings and psychology for a patient with a Lupus diagnosis, and the support network of family and friends. The most telling idea she gave in the Preface, that while in college she had been diagnosed with Epstein Barr Virus. If you pick up a book called "Medical Medium," by Anthony William, you will learn that he thinks Lupus is a stage 3 viral infection of Epstein-Barr (p.45). I was hoping for a book that might delve deeply into the physiology of Lupus to add to my understanding of the cluster of symptoms from my research with Dr. Google.
I highly recommend this book for those living with Lupus, especially for newly diagnosed individuals and their loved ones. Ms. Oram writes in such a down-to-earth, relatable manner - she doesn't talk above you, as some of the more clinically-focused literature tends to do. This is a great read with practical advice and anticipatory guidance.
Reading it b/c my niece was recently diagnosed with lupis. It helps with all the info. it contains
This book is fabulous for everyone. Not just people that have Lupus or friends and family members. So much applies to "all" of us and dealing with life. So many POSITIVE words for us to "all" live by. One can relate to everything Ms. Oram states. So, helpful in opening my eyes to things we meaningful say BUT not interrupted the way we meant it to be. Once again, " you can NEVER judge a book (or person) by it's cover".Thank you Ms. Oram for taking your time and total honesty, in writing this book!!!!Shelleyâ¤
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